Hope’s Heart is Spinning at The PHILLY SPIN-IN

12 01 2018
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This is my cousin Scott. We are both members of the zipper club. A club neither of us chose to join but came with the Congenital Heart Defect membership we both received at birth. That’s the reality for many parents. One of every 120 children is born with congenital heart disease.Others are diagnosed with a heart condition during childhood, and some acquire heart disease as they grow. All told, there are millions of children living with some type of pediatric heart disease. That is why my heart is spinning and why I need your heart to spin too. 
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On Sunday March 11, 2018 I am so excited and proud to be one of the Spin instructors at this years Philly Spin-In for the Children’s Hospital of Philadelphia — a fun, high-energy, indoor cycling party to help children with heart disease. It truly is a big workout to help little hearts.  Like my cousin Scott who was born with a congenital heart defect known as TGA-Transposition of the great arteries Scott spent his first 17 days of his life at CHOP. Turning 14 years old next month Scott is a normal healthy active boy with no restrictions.  His parents are thankful for the amazing doctors, nurses and the whole team of professionals at the Cardiac Center at Children’s Hospital of Philadelphia.
I am Spinning for a cause that couldn’t get any closer to my very own heart.
I was born with a CHD, a Bicuspid Aortic Valve and found out at age 50 when an aneurysm developed. But no parent should ever have to hear the words “Your child has congenital heart disease.”  That is why the Philly Spin- In is raising support for the Cardiac Center to make tomorrow’s breakthroughs possible at Children’s Hospital.
Please join me, other cycle instructors and hundreds of people for this amazing event to benefit Children’s Hospital of Philadelphia.
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RIDE/DONATE or DONATE 
Be on my team Hopeheartstrong  by making a donation and signing up to ride at this link:
As a team we need to raise $1000. The more we raise the more bikes we will have at the event. 
Or please DONATE.  You can make a donation to the event
Details on the Philly Spin-In at: PHILLY SPIN – IN
Philly Spin-In
Corporate Sponsorship info is also available on-line and by contacting
Amanda Calabrese
Associate Director, Peer to Peer Fundraising
3401 Civic Center Blvd
Philadelphia, PA 19104
267-426-6477 ● f 267-426-6530
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While I am passionate about Health and Fitness and am a preacher of heart health even more so now after my open heart surgery, anyone who knows me well knows I am a Spinning lover! ( I am sure people who take my classes have other adjectives to describe me)  However, having been an instructor for almost 20 years I credit spinning and so did my doctors to the reason I made it to age 50 with a CHD.  Spinning gave me a strong healthy heart, a genetic defect gave me a bad valve.  On Sunday March 11th at the Children’s Hospital of Philadelphia I plan on spinning my heart out because I physically can! Because I am grateful for those that provided me the medical advances, technology and skills that keep my heart pumping. I hope that events like the Philly Spin – In forge new discoveries in cardiac care, bolster training programs, advocate for children in underserved communities, and quickly respond to new opportunities that may — one day — cure all children with pediatric heart disease. Please donate.
Thank you from my heart ❤  Hope
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Open My Heart Now Baby – Day 16 Post Op.

25 04 2015
DAY 16 POST OP Pumping little pink weights and getting the blood  flowing.

DAY 16 POST OP Pumping little pink weights and getting the blood flowing.

It’s been 16 day’s since my open heart surgery.  In these past  16 days I learned some things. That I have an amazing support system of friends and relatives, that I don’t like sitting in the back seat of the car and that Kevin Bacon has nothing on Dr. Bavaria when it comes to six degrees of separation.  It seems like everyday someone emails me or tells me that Dr. Bavaria did their father’s surgery, their mom mom’s valve replacement or they’ve worked with him, for him, or think he’s god. I think he’s god too.

DAY 1 -  Post op ICU hours after surgery. Today is the first time I have seen this picture. Wow

DAY 1 – Post op ICU hours after surgery. Today is the first time I have seen this photo.

It was kinda neat in an eerie and peculiar way to have a nurse stop by my room to tell me she watched my surgery and how 4 fellows, who are doctors doing their fellowship, pulled the wires that were holding my sternum closed while one fellow wired, sewed and glued me shut. Her words: “It was so cool. They literally leaned  back with their body weight and pulled on the wires while one fellow closed you up.”  I’d actually like to see my video. My post op report came in the mail today and I learned I was cross clamped for 160 minutes and on bypass for 217 minutes. Technically dead for a large part of my 6 hour surgery.  Body temperature lowered and then brought back to life by reconnecting my heart.  My father with his disposable flip phone took a picture of me in the ICU and sent it today.  My emotions vary looking at this picture, but mainly I’m thinking that I couldn’t imagine seeing one of my kids like this.  In the 16 days since surgery I’ve made some progress.   And although you would look at me and never know I just had major surgery I am dealing with  daily killer headaches, went  AFib two days ago and I get dizzy and light headed if I get up  too fast. I have noticed I am burping a lot but am totally blaming that on the pig valve, lol. I am not craving bacon, have not regained my love of coffee and peanut butter yet but chocolate still makes everything better.

Over the years I have often got asked while working out what I was training for? My response always was on the likes of “My next birthday”  but my usual response was “life”.  I just didn’t know I was actually training for open heart surgery. My abs made sitting up on day two without assistance easier, my thunder thighs from spinning made getting off the toilet easier and  my glutes from squatting made getting out of bed a tad less difficult.

I have eased back to work teaching spin off the bike, giving orders for TREAD & SHRED class and training a couple of clients who know I am not picking up their weights, demonstrating spiderman push-ups and by no means jumping rope with them.  I love, love, love  jumping rope.   I seriously cannot sit and watch any more daytime TV because it has convinced me that this is why America is full of overweight lazy people. Honestly all of my silly shows on Bravo that I am addicted to seem like rocket science compared to the amount of talk shows, Judge shows and game shows on TV.   I’ll take any Housewives shows over the annoying ladies on the View, Kathy Lee Gifford who gave me a migraine, and I will say it…… watching Kelly Ripa is like watching a puppet with a hand up its ass. Oh, and  “Let’s Make a Deal.” ….. How about” Let’s get a job”, “Let’s Volunteer”  or “let’s go workout.” ” I’ll take the box marked LIFE that Carol Merril is standing in  front of Monty.”

I have been told I look great.  People can’t believe I had open heart surgery, that I should be home resting, taking time off. I have even been told that I should look into going on disability. Are you serious?  Disability? What’s my disability?  I wake up everyday and I have a pulse, and I say “thank you.”  The only disability is a bad attitude and the belief that you are owed something in life.   I have a choice to make everyday…. to be mad about what I went through or to move forward and be happy that each day I am stronger than the day before. I am a lucky girl.  Hallelujah brother that my girls will come home from college in the next few weeks and will see me looking like their normal mom, tell me my scar is gross and ask me if we can we go to the mall.   If I have one thing to say is that life is good and yes I love Madonna.

Please follow my fitness blog and now my journey after open heart surgery. To read the original pre-op post Fit, Fifty & WTF go to hopenagy.wordpress.com and scroll to 4/7/2015

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Hope Nagy- Certified Personal Trainer

hope@motivatehopestrength.com

610-608-6087

MotivateHopeStrength.com   Personal Training

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Fit, Fifty & Feeling WTF ( Wonderful, Thankful & Freakin’ Relieved)

17 04 2015

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Alive, thankful and on the road to recovery. Surgery took about 6 hours last Wednesday April 8th, 2015.  Exactly one week ago I laid in the ICU, opened my eyes, thought “thank god I’m alive” and then felt a two by four in my throat. The ventilator.  I’ve seen it on TV medical shows, heard other peoples stories of it, was told to be prepared for it and yet I still lost it.  Yes, if my arms weren’t strapped down I would have pulled it out of my mouth. “I can’t breathe” and the words are not coming out. The nurse standing on the other side of the large glass wall can’t hear me. “I can’t breathe”, banging my restricted arms and hands against the sides of the bed in a quick knocking like manner trying to get attention. “I can’t breathe, get this out of my throat.” All I hear is “Honey calm down, relax, it will be out in a few HOURS.”  And like I have also seen in scary movies, I am now playing the part of the person being lowered into the ground , dirt being shoveled on top of my grave…… I’m being buried alive.  But at this moment in my life it felt real and not like a movie. THIS is what I will remember most from my surgery, not the chest pain, headaches and nausea, but the ventilator freaking me out. Not that I didn’t expect to be awake, but I am sure many share with me this fear when having any kind of surgery where anesthesia is used.  Especially one where they tell you they are going to unplug your heart. Which is a great reason to get your ducks in a row, isn’t it?  My ducks were in a row, but unlike prior surgeries in my adult life this time I didn’t leave “the envelope” with letters addressed to my kids. I just couldn’t write them. Just the thought made me cry.  Instead, right before getting wheeled away to surgery I told my tatooed boyfriend “make sure they finish college and No Tattoos!”

I ended up not having a bicuspid valve but a badly deformed tricuspid valve. Option one: repair was out!  Option two: tissue valve was in. “Oink Oink”, I have a new pig valve.  The decision on which tissue valve the surgeon used, cow or pig, was based on what fit me best. Dr. Bavaria explained to my family that he prefered pig valves for athletes. I still think they are lying to me when they said he called me an athlete, lol.  Did he say gym rat, weekend warrior, daughter of parents who worked full time as a child and was told she can not play sports or she would have to find her own rides? Oh and no one tell my new friends on the Facebook group page  Bicuspid Aortic Valve Disease (BAVD) that I am now a poser.   The valve was a tri-leaflet. The leak in my valve was caused by a prolapsed leaflet and tears in the valve leaflets themselves, which are called fenestrations.   That was the result of the heart being enlarged and the blood trying to get out. Dr. Bavaria explained to my family that it was spraying like a hose in different directions.

I was was moved out of I.C.U. less than 24 hours after surgery to a room on Silver 10, one of the many cardiac floors at the Hospital of the University of Pennsylvania.   I was told that I would wake up with things like that horrible ventilator, wires connected to the inside of my heart, drainage lines as long as knitting needles under my incision,  I.V. lines in both arms, and a line in my neck.  So like a puppy waiting for a treat, when a white coat appeared every day in my room  I knew something was coming out.  And one by one and day by day they did.  Ready to roll, I took to the hallways to walk and that is when I was immediatelt humbled. Heading towards me, moving faster than I was,  dressed in the same team uniform, white and blue gown, front pocket to hold a heart rate monitor, with wires dangling from everywhere,  I am passed by a 90 year old man. Really? WTF?  I give the typical head nod I use when a fellow mountain biker passes me and that’s when I notice….he’s cheating, he has a walker, that’s not legal!  Get his bib number!!!  Being the competitve person that I am, and hearing that he is on day 14 post op and I day 1 post op , I took a deep breath….and relaxed a little. I left the hospital on Monday, 5 days after my surgery with my new medal: a 10 inch scar down my chest with a bump at the top that looks like a nose of one of the presidents on Mount Rushmore. This I am being assured, will go down over time.   The absolute best feeling was coming home to my own house, taking a long hot shower, and crawling into my own bed. No more sounds of beeps and bells, and no one waking me up to check my vitals the second I doze off.  Other than dealing with some insane pressure headaches I am good. My daily walks around my neighborhood are getting a little longer each day. Breathing better each day. And getting my ball up higher and holding it longer each day on my spirometer. That same spirometer that I would wave in my dads face when I visited him after his heart surgeries. “Did you suck today Dad?” is now  “Hope did you suck today” Crazy how things change when we least expect it.  Crazy how hard that spiromoter is. FullSizeRender copy                                                                Being initiated into the Zipper club by my dad. 

Each morning we wake up and we have a choice to pick our attitude for the day.  It’s a daily decision we make. Am I going to be miserable or am I going to be motivated?  This surgery leaves me not in pain but with the joy of knowing how lucky I am to have the life that I do.  The gift of fitness is what allowed me to get to 51 without dying, and it is now giving me a much easier recovery.   And if anyone thought I didn’t shut up before about being heathy, then look out.  I am on fire.  Just the fact that the nurses told me the average person stays 14 days in the hospital for my surgery freaked me out. You make life altering choices each day and yet people take better care of their yards than their bodies. Yes I saw the eyes as I walked the halls of the hosital.  Looks of sympathy from visitors and from other patients. But what they didn’t know is one, don’t feel sorry for me, and two, I’m  looking at you thinking that you probably need my business card!  I’m in pain from not working out. I am dying that I can’t go lift and just sweat my ass off. The luxury of being able to workout I treasure daily as do so many other people. Just ask someone whose lost that opportunity.  It’s my life. It’s your life. It’s your choice.

I am up for air, breathing and look out, this gal is on fire……..but let me sit down for a second, I just got a little dizzy.

*The pre-op blog posted the day before my surgery FIT,FIFTY & WTF can be found at hopenagy.wordpress.com and scroll to prior post or at: https://hopenagy.wordpress.com/2015/04/08/fit-fifty-w-t-f/

 

Shout out to the N.A.’s, N.P’s, and the lovely gals on Silverstein 10 at the Hospital of the University of Pennsylvania who took care of me, listened to me complain “my head hurts” and my nurse Jenny from Utah who let me interagate her about her life and explain that people from Philly are not ALL angry we just look that way and by gosh gave me the biggest compliment of my life when she said “the other nurses think you’re in your thirties”.  “STFU Really?” Really!!!

IMG_8176Post op Day 6 – writting my lattest blog, having my Starbucks and staring at the piles of medical bills only these are pre surgery. 

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Contact Hope@motivatehopestrength.com 

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Biking in Whistler Canada a Mountain Bikers Oasis by Hope Nagy

12 10 2013

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I just got back from a  trip to Whistler, in Canada.   Home to the  2010 Olympic and Paralympic Winter Games ,Whistler is about a two and a half hour car ride from Vancouver along the scenic Highway 99, also known as the Sea to  Sky Highway. Whistler in  the winter months is a mecca for skiers and snowboarders.  In the spring, summer, and a little bit into the fall it is a mountain bikers paradise.  From cross country to downhill, Whistler offers it all. The views are amazing, also shared by road cyclists and hikers.

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SEA TO SKY HIGHWAY 

If you’re planning a trip to Whistler for mountain biking, I will tell you that September is the least expensive time of the year to go because it’s the end of bike season.   I would recommend going spring or summer if you can afford it.  Even though the prices for a hotel room are exceptionally low in September the risk of rain is high, as I found out first hand. Also the local bike shops sell off their rentals at the end of the season to make room for next years new models, so I did have a hard time finding decent bikes even though there are a lot of shops in Whistler Village and the surrounding areas. After several calls in the weeks prior to my vacation I was able to rent myself a 2014 Santa Cruz Juliana and my boyfriend a Santa Cruz 29’er Tallboy from Evolution.    Evolution Whistler: Snowboard, Skate, Bike, Fashion store is located right in Whistler Village, were very accommodating, and the bikes we rented were pristine.  Suddenly my vintage 2001 Cannondale Scalpel might need to be replaced by a new Santa Cruz!  I normally ride a men’s frame, but I enjoyed the ride and feel of this women’s bike. My boyfriend Kevin, who usually rides a 26″ tire, loved his 29’er Tallboy and confirmed for him that he wants to make the switch to a larger tire.

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Whistler is home to Whistler Bike Park, http://bike.whistlerblackcomb.com. The park is for riders of all levels. They have tight single track with drop offs, steep rock faces, roots, twists and turns, and ramps. After watching the awesome videos on their site  this non-armour clad gal decided to go the route of the hills and cross-country trails outside the bike park .  Body armour and motocross style downhill helmets are a must. The sight of dozens of downhillers walking their bikes through Whistler Village is pretty cool, and watching the downhillers race down the mountain is even cooler. I wish I had the balls to ride downhill!

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I was lucky after a shout out on my Facebook page MotivateHopeStrength, to have the company Whistler Bike Guide recommended to me.  Some guides take their vacations at the end of the season, but I totally lucked out. Not only did I find a great guide, but I got the man who published the first Whistler bike guide, and one of the designers of the Whistler Trail System at Lost Lake Park!  Grant Lamont  guided us up some awesome climbs, and quick twisting descending single tracks. No map for us needed.  Grant lead and we followed.  The trail system is 126 miles of single track in the forest, and the trails are marked like a ski slope. Green circles, blue squares and black diamonds.  Every trail system has a name and we rode most of the Zappa system, with names like Disco Boy, we also caught a ride on Comfortably Numb and the ever popular River Runs Through it.   Grant gave us a three hour plus tour that gave me the hill climbs I wanted, and the downhills that my boyfriend loves.  His expertise was appreciated, and made the ride more enjoyable since we didn’t have to think about getting lost, and instead got to enjoy the ride. He also gave us an in-depth history of the trail system along with some other entertaining stories.

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 Grant Lamont –Whistler Bike Guide

Whistler Village was quaint.  Great shops, lodging, restaurants, and an over abundance of coffee shops.   Like most resort towns, Whistler is pricey.  The Four Seasons Whistler was beautiful and at the off-season rate it was very affordable.  When I search for a hotel it must have a gym/fitness room.   Location and a quality gym are my top priorities. I really wish more hotels would understand that a lot of us gym rats actually do base our choice of lodging based on it’s fitness room.    I give the Four Seasons Whistler a 10 out of 10 for the beautiful room, impeccable service and amenities, but only an 8.5 out of 10 for the fitness center.  The cardio equipment was in abundance and was like new.  At least 10 treadmills, ellipticals, bikes and even 14 sparkling new Schwinn Spin bikes. There were a few machines all that I didn’t particularly care for and one that was broken.   I never saw one person use these machines, most likely because they were awkward and were not user friendly. The small weight area had just one bench, which sat snugly in a very small area making it impossible for more than one person to lift. I will say I was pleasantly surprised that there was a bench press with a bar and plates, and a nicely sized aerobic room where they hold classes in the busier season.  For a hotel of this size and grandeur the weight area could be a little bigger so that at least two people could use it at the same time. I did love that the gym was located right next to the spa and I throughly enjoyed going right from the gym to the outside hot tubes, steam rooms and showers. Note to the Four Seasons, you can hire me to design and equip your fitness rooms!

FOUR SEASON WHISTLER

FOUR SEASON WHISTLER

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Heading back to Vancouver we stopped at the Capilano Bridge Suspension Park.  Spectacular and breathtaking bridges, cat walks contained in a rain forest. The perfect ending to a perfect trip! Now… where should I go next?

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Hope Nagy Personal Trainer

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MotivateHopeStrength.com

Email Hope at:    Hope@motivatehopestrength.com

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