Not So YOUNG, a Little WILD and Valversary THREE.

12 04 2018

 

Each year as April 8th approaches I look forward to going to the hospital and taking tests.  My goal is to pass tests and  by pass the surgeon. And by that I do not mean not bypass surgery, I mean do not have a reason to see the surgeon.  By heart I have the day’s routine down. Quick Cat Scan and off to Ultra Sound. Let me give a shout out to Ben at Penn Medicine for the “extra touch” of music videos.  Seriously watching Coldplay and then turning my head to see the ultrasound monitor showing my valve open and closing to the beat of Adventure of a Lifetime was  paradise. Really was cool.

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Once my tests are complete, I sit in a room in my surgeons office.  And although I know I feel great and that I exercised and trained hard this year to make my heart my strongest muscle, I sit and stare at the door in hopes Dr. Bavaria does not walk in.  Seeing him in his blue blazer over his scrubs would mean something isn’t pumping right, or he’s about to tell me the words I fear to hear one day that  it’s getting close to valve replacement time.  Knowing that this day will come and my aortic valve will need to replaced again is what drives me to take care of myself.  I am determined to walk in and walk out upright.  (Tissue /bioprosthetic valves have an average lifespan of  10 to 20 years) 

But lucky for me, GOD the name I like to call my surgeon, did not enter the room. I passed my tests, hit the elevator button, hit Schuylkill Expressway  and of course hit the gym for a long sweaty heart-pumping workout.  Another year down and time to train again for the life I so appreciate.  Diet and Exercise… if a doctor could write it on a prescription pad it would be the most prescribed medicine. Because people love to medicate then prevent. Gym floor or hospital floor?  Why would anybody choose the later.  While I have learned that my genes and cells  have come preprogramed for me at birth and that although I might do my best to live a healthy life style, I can’t out run, out lift or out program what unfortunate I was dealt with. What I can do is to be  physically and mentally strong to deal with anything that should be thrown my way.   A healthy heart BEATS a sick one.   So I workout like my life depends on it, cause it does.

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THREE YEARS  AGO , 5 DAYS POST OPP PEDDLING FOR MY OWN HEART.

THIS YEAR I PEDDLED FOR LITTLE HEARTS AT THE PHILLY SPIN-IN

I couldn’t of thought of a better way to celebrate my 3 year Valversary than to be one of the instructors at the Philly Spin-In for Children’s Hospital of Philadelphia.   Words cannot begin to tell you how appreciative I was to be a part of this event to raise money, awareness and a cure for congenital heart defects. To hear the stories, see the signs, see all the teams spinning and feel the love for all the heart warriors is a day I’ll remember and one that makes me feel blessed. The fund will run till the end of April so please donate cause little hearts need to grow up to be big hearts. You can donate at: Philly Spin In

It’s been another heart full year.

Hope

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Contact Hope Nagy

hope@Motivatehopestrength.com

 

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Hope’s Heart is Spinning at The PHILLY SPIN-IN

12 01 2018
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This is my cousin Scott. We are both members of the zipper club. A club neither of us chose to join but came with the Congenital Heart Defect membership we both received at birth. That’s the reality for many parents. One of every 120 children is born with congenital heart disease.Others are diagnosed with a heart condition during childhood, and some acquire heart disease as they grow. All told, there are millions of children living with some type of pediatric heart disease. That is why my heart is spinning and why I need your heart to spin too. 
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On Sunday March 11, 2018 I am so excited and proud to be one of the Spin instructors at this years Philly Spin-In for the Children’s Hospital of Philadelphia — a fun, high-energy, indoor cycling party to help children with heart disease. It truly is a big workout to help little hearts.  Like my cousin Scott who was born with a congenital heart defect known as TGA-Transposition of the great arteries Scott spent his first 17 days of his life at CHOP. Turning 14 years old next month Scott is a normal healthy active boy with no restrictions.  His parents are thankful for the amazing doctors, nurses and the whole team of professionals at the Cardiac Center at Children’s Hospital of Philadelphia.
I am Spinning for a cause that couldn’t get any closer to my very own heart.
I was born with a CHD, a Bicuspid Aortic Valve and found out at age 50 when an aneurysm developed. But no parent should ever have to hear the words “Your child has congenital heart disease.”  That is why the Philly Spin- In is raising support for the Cardiac Center to make tomorrow’s breakthroughs possible at Children’s Hospital.
Please join me, other cycle instructors and hundreds of people for this amazing event to benefit Children’s Hospital of Philadelphia.
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RIDE/DONATE or DONATE 
Be on my team Hopeheartstrong  by making a donation and signing up to ride at this link:
As a team we need to raise $1000. The more we raise the more bikes we will have at the event. 
Or please DONATE.  You can make a donation to the event
Details on the Philly Spin-In at: PHILLY SPIN – IN
Philly Spin-In
Corporate Sponsorship info is also available on-line and by contacting
Amanda Calabrese
Associate Director, Peer to Peer Fundraising
3401 Civic Center Blvd
Philadelphia, PA 19104
267-426-6477 ● f 267-426-6530
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While I am passionate about Health and Fitness and am a preacher of heart health even more so now after my open heart surgery, anyone who knows me well knows I am a Spinning lover! ( I am sure people who take my classes have other adjectives to describe me)  However, having been an instructor for almost 20 years I credit spinning and so did my doctors to the reason I made it to age 50 with a CHD.  Spinning gave me a strong healthy heart, a genetic defect gave me a bad valve.  On Sunday March 11th at the Children’s Hospital of Philadelphia I plan on spinning my heart out because I physically can! Because I am grateful for those that provided me the medical advances, technology and skills that keep my heart pumping. I hope that events like the Philly Spin – In forge new discoveries in cardiac care, bolster training programs, advocate for children in underserved communities, and quickly respond to new opportunities that may — one day — cure all children with pediatric heart disease. Please donate.
Thank you from my heart ❤  Hope
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