Fit, Fifty & Feeling WTF ( Wonderful, Thankful & Freakin’ Relieved)

17 04 2015

FullSizeRender  Post Op Day 5 

Alive, thankful and on the road to recovery. Surgery took about 6 hours last Wednesday April 8th, 2015.  Exactly one week ago I laid in the ICU, opened my eyes, thought “thank god I’m alive” and then felt a two by four in my throat. The ventilator.  I’ve seen it on TV medical shows, heard other peoples stories of it, was told to be prepared for it and yet I still lost it.  Yes, if my arms weren’t strapped down I would have pulled it out of my mouth. “I can’t breathe” and the words are not coming out. The nurse standing on the other side of the large glass wall can’t hear me. “I can’t breathe”, banging my restricted arms and hands against the sides of the bed in a quick knocking like manner trying to get attention. “I can’t breathe, get this out of my throat.” All I hear is “Honey calm down, relax, it will be out in a few HOURS.”  And like I have also seen in scary movies, I am now playing the part of the person being lowered into the ground , dirt being shoveled on top of my grave…… I’m being buried alive.  But at this moment in my life it felt real and not like a movie. THIS is what I will remember most from my surgery, not the chest pain, headaches and nausea, but the ventilator freaking me out. Not that I didn’t expect to be awake, but I am sure many share with me this fear when having any kind of surgery where anesthesia is used.  Especially one where they tell you they are going to unplug your heart. Which is a great reason to get your ducks in a row, isn’t it?  My ducks were in a row, but unlike prior surgeries in my adult life this time I didn’t leave “the envelope” with letters addressed to my kids. I just couldn’t write them. Just the thought made me cry.  Instead, right before getting wheeled away to surgery I told my tatooed boyfriend “make sure they finish college and No Tattoos!”

I ended up not having a bicuspid valve but a badly deformed tricuspid valve. Option one: repair was out!  Option two: tissue valve was in. “Oink Oink”, I have a new pig valve.  The decision on which tissue valve the surgeon used, cow or pig, was based on what fit me best. Dr. Bavaria explained to my family that he prefered pig valves for athletes. I still think they are lying to me when they said he called me an athlete, lol.  Did he say gym rat, weekend warrior, daughter of parents who worked full time as a child and was told she can not play sports or she would have to find her own rides? Oh and no one tell my new friends on the Facebook group page  Bicuspid Aortic Valve Disease (BAVD) that I am now a poser.   The valve was a tri-leaflet. The leak in my valve was caused by a prolapsed leaflet and tears in the valve leaflets themselves, which are called fenestrations.   That was the result of the heart being enlarged and the blood trying to get out. Dr. Bavaria explained to my family that it was spraying like a hose in different directions.

I was was moved out of I.C.U. less than 24 hours after surgery to a room on Silver 10, one of the many cardiac floors at the Hospital of the University of Pennsylvania.   I was told that I would wake up with things like that horrible ventilator, wires connected to the inside of my heart, drainage lines as long as knitting needles under my incision,  I.V. lines in both arms, and a line in my neck.  So like a puppy waiting for a treat, when a white coat appeared every day in my room  I knew something was coming out.  And one by one and day by day they did.  Ready to roll, I took to the hallways to walk and that is when I was immediatelt humbled. Heading towards me, moving faster than I was,  dressed in the same team uniform, white and blue gown, front pocket to hold a heart rate monitor, with wires dangling from everywhere,  I am passed by a 90 year old man. Really? WTF?  I give the typical head nod I use when a fellow mountain biker passes me and that’s when I notice….he’s cheating, he has a walker, that’s not legal!  Get his bib number!!!  Being the competitve person that I am, and hearing that he is on day 14 post op and I day 1 post op , I took a deep breath….and relaxed a little. I left the hospital on Monday, 5 days after my surgery with my new medal: a 10 inch scar down my chest with a bump at the top that looks like a nose of one of the presidents on Mount Rushmore. This I am being assured, will go down over time.   The absolute best feeling was coming home to my own house, taking a long hot shower, and crawling into my own bed. No more sounds of beeps and bells, and no one waking me up to check my vitals the second I doze off.  Other than dealing with some insane pressure headaches I am good. My daily walks around my neighborhood are getting a little longer each day. Breathing better each day. And getting my ball up higher and holding it longer each day on my spirometer. That same spirometer that I would wave in my dads face when I visited him after his heart surgeries. “Did you suck today Dad?” is now  “Hope did you suck today” Crazy how things change when we least expect it.  Crazy how hard that spiromoter is. FullSizeRender copy                                                                Being initiated into the Zipper club by my dad. 

Each morning we wake up and we have a choice to pick our attitude for the day.  It’s a daily decision we make. Am I going to be miserable or am I going to be motivated?  This surgery leaves me not in pain but with the joy of knowing how lucky I am to have the life that I do.  The gift of fitness is what allowed me to get to 51 without dying, and it is now giving me a much easier recovery.   And if anyone thought I didn’t shut up before about being heathy, then look out.  I am on fire.  Just the fact that the nurses told me the average person stays 14 days in the hospital for my surgery freaked me out. You make life altering choices each day and yet people take better care of their yards than their bodies. Yes I saw the eyes as I walked the halls of the hosital.  Looks of sympathy from visitors and from other patients. But what they didn’t know is one, don’t feel sorry for me, and two, I’m  looking at you thinking that you probably need my business card!  I’m in pain from not working out. I am dying that I can’t go lift and just sweat my ass off. The luxury of being able to workout I treasure daily as do so many other people. Just ask someone whose lost that opportunity.  It’s my life. It’s your life. It’s your choice.

I am up for air, breathing and look out, this gal is on fire……..but let me sit down for a second, I just got a little dizzy.

*The pre-op blog posted the day before my surgery FIT,FIFTY & WTF can be found at hopenagy.wordpress.com and scroll to prior post or at: https://hopenagy.wordpress.com/2015/04/08/fit-fifty-w-t-f/

 

Shout out to the N.A.’s, N.P’s, and the lovely gals on Silverstein 10 at the Hospital of the University of Pennsylvania who took care of me, listened to me complain “my head hurts” and my nurse Jenny from Utah who let me interagate her about her life and explain that people from Philly are not ALL angry we just look that way and by gosh gave me the biggest compliment of my life when she said “the other nurses think you’re in your thirties”.  “STFU Really?” Really!!!

IMG_8176Post op Day 6 – writting my lattest blog, having my Starbucks and staring at the piles of medical bills only these are pre surgery. 

IMG_0090

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Contact Hope@motivatehopestrength.com 

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11 responses

17 04 2015
Mindy

That was the best blog ever! Glad you are getting better! I have some clothes for u! I’ll call u because I want to stop in and see you.

Xo

Sent from my iPhone

>

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17 04 2015
Patty Lee

So glad you had a successful surgery! You look fabulous! You are inspiring to many others!!!

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17 04 2015
Nancy L Haigh

Hope, you are and continue to be a model for so many women! So happy you made it through surgery and out of the hospital in 5 days. Take care and heal on!

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27 04 2015
Hope Nagy

Thanks Nancy

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17 04 2015
Nina Borras Yannatelli

God Bless you Hope! Stay strong, keep the fight! You’re an inspiration to others. As time passes so will this restriction.

Take care,
Nina

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27 04 2015
Hope Nagy

Thanks Nina

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18 04 2015
Karen

Hi Hope,
Your blog just came up on my facebook feed through a mutual friend. Thank you for posting.. First off I’m so glad that you are recovering so well and your surgery was a success.. Coincidentally, my 79 yr old father is recovering from the same surgery. He had his at HUP w dr acker last Thursday April 9. He is currently in silver 10 as well. He would be home, but sufferd a setback w some a-fib issues when he sleeps. I really appreciate reading your blog, as it articulates so well a lot of what my father is going through.. Thank you!!
I wish you well in the rest of your recovery.
Take care.

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18 04 2015
Hope Nagy

Hey Karen. I went afib on my first day out of icu . They got it back within 4 hours. He’ll be fine , wish him well. He’s in great hands .

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18 04 2015
Karen

Yes…. He was in afib after the surgery and then it corrected on its own…
I know he’s in great hands. HUP has been amazing!!! I think it will just be a few days as they correct his meds… He is a great deal older than you, but was alwAys active and fit and aside from the afib is recovering amazingly😄
I sat w my dad when he was under anesthesia and with the breathing tube and saw exactly what you wrote about…. That’s the part of this whole thing that scared me most!!!!

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18 04 2015
Cate

Hope- excellent blog! And you are so right – we do have a choice – every day! I love yeah sister! You’re just simply the best! Xoxoxox

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22 04 2015
Fit, Fifty & W.T.F. | Hope Nagy's Blog

[…] at: https://hopenagy.wordpress.com/2015/04/17/fit-fifty-feeling-wtf-wonderful-thankful-freakin-relieved/ […]

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